I know, it’s a bit of a cheat but I have posted, but not here. I am currently blogging by proxyish at Not Just a Patient (my fiancé’s blog about his heart op).
Today’s post can be found here
And with that I say have not slept for over 24 hours and must nap now becasue I have to be up in 5 and a half hours to call my darling and wish him happy operation day!
Love to you all.
I should be sleeping.
In 4 and a half hours Neil and I leave for the hospital. No. It’s not his heart operation it’s “only” the camera test to find out what they will be doing in his heart operation but… Sigh.
They will be knocking him out. We saw the anaesthesiologist on Tuesday and we were assured everything will be find. The staff at the Lancashire Cardiac Centre in Blackpool are second to none and every time we go there we are made more and more confident. Everyone from the surgeons to the receptionists are competent and warm and helpful in a way I haven’t seen in a medical facility in a long long time.
Last time Neil had this done I didn’t know him. It was in a different hospital and was many years ago but still…
Last time Neil had this find he was, again, under general anaesthetic and they ripped his oesophagus and didn’t notice. Granted it was only a small tear but after s couple of days at home I think the phrase he uses in “fountain of blood” and then rushed back into hospital.
Now I KNOW everything is going to be okay this time and I know that what happened last time in a rare event (the shocked look on the doctor’s, and nurse’s, face when we told them revealed just how rare) and I know I am panicking over nothing but this is my Neil, my whole world, my reason for being.
I actually going myself praying a few minutes ago. I was down on my knees hoping that something was paying attention.
Christ. If I’m like this now what the he’ll am I going to be like when the operation comes?
There is a new blog out there. My dear fiancé has started a blog to talk about his forthcoming heart operation and how he copes with his Marfan’s. Awesomeness is now called Not Just a Patient. Please show him some support. Pretty please.
From me today all you are getting is this memr which I stole from Karl at Secondhand Tryptophan as I have nothing to post about at the moment.
- ONE OF YOUR SCARS, HOW DID YOU GET IT? I have an odd Harry Potter like scar on my forehead. I got it when at evil a made me fall off a wall when I was younger.
- WHAT IS ON THE WALLS IN YOUR BEDROOM? Paint. Pictures, NaNoWriMo/ Script Frenzy certificates.
- WHAT DOES YOUR MOBILE PHONE LOOK LIKE? An iPhone 3G complete with smashed screen and many splits in the casing. I am a bad iPhone owner.
- WHAT MUSIC DO YOU LISTEN TO? Everything. At the moment I listen to The Social Network soundtrack. A lot.
- DO YOU KNOW WHAT TIME YOU WERE BORN? 7:30 in the morning. The perfect way to start the day.
- WHAT DO YOU WANT MORE THAN ANYTHING RIGHT NOW? My fiance’s heart operation to go well… and a suitcase full of money.
- WHO DO YOU MISS? My granny.
- IS ANYONE IN LOVE WITH YOU OR HAS A CRUSH ON YOU? A crazy man is in love with me. It’s fortunate because I love him too.
- WHO WAS THE LAST PERSON YOU KISSED? My fiancé. Yay.
- WHAT’S YOUR MIDDLE NAME? I have no middle name on my birth certificate but mum says it was supposed to be Lisa.
- THE BEST TV SHOW EVER CREATED? The West Wing. Obviously.
- THE LAST PERSON YOU TALKED TO? Neil, my fiancé. Did I mention he has a blog?
- DO YOU GET SCARED IN THE DARK? Yes. Am a total baby in the dark
- THE LAST PERSON TO MAKE YOU CRY? The writers of Grey’s Anatomy.
- WHAT IS YOUR FAVOURITE COLOGNE / PERFUME? CK Eternity.
- WHAT KIND OF HAIR/EYE COLOUR DO YOU LIKE ON THE OPPOSITE SEX? Brown hair and hazel/green eyes. No reason.
- WOULD YOU RATHER BE SMART OR FUNNY? Smart.
- COFFEE OR ENERGY DRINKS? Coffee. Energy drinks give me headaches.
- WHAT IS YOUR FAVOURITE PIZZA TOPPING? Chicken, sausage, mushrooms, read onions and epic amounts of cheese.
- IF YOU CAN EAT ANYTHING RIGHT NOW, WHAT WOULD IT BE? Chocolate. A huge bar of Cadbury’s Dairy Milk.
- WHO IS THE LAST PERSON WHO MADE YOU MAD? My fiancé’s doctor who is a complete moron.
- DO YOU SPEAK ANOTHER LANGUAGE? I speak Geek but no other languages.
- WHAT WAS THE FIRST GIFT SOMEONE EVER GAVE YOU? My panda teddy bear – I have no idea who it was. I’ll ask Mum.
- DO YOU LIKE SOMEONE? I like lots of people.
- ARE YOU DOUBLE JOINTED? No.
- FAVOURITE CLOTHING BRAND? I don’t have a favourite clothing brand but shoes? Skechers.
- WHAT’S YOUR DREAM CAR? A Volvo XC60 – yes, that car.
Does this mean I am growing up?
- WHAT COLOUR IS IT? Gunmetal grey/charcoal
- WHAT’S YOUR FAVOURITE KIND OF EXERCISE? Walking the dog… or dancing like a fool.
- WOULD YOU FALL IN LOVE KNOWING THAT THE PERSON IS LEAVING? You can’t help who you fall in love with and when. Yes.
- WHAT IS THE BEST WAY TO TELL SOMEONE HOW MUCH THEY MEAN TO YOU? Be there when they need you.
- WRITE A NUMBER FROM ONE TO A HUNDRED? 14.
- BLONDES OR BRUNETTES? Brunettes
- WHAT IS THE ONE NUMBER YOU CALL OFTEN? My Mums.
- WHAT ANNOYS YOU MOST? People who don’t care and selfish people.
- HAVE YOU BEEN OUT OF YOUR COUNTRY? WHERE DID YOU GO? WHAT PLACE DID YOU LIKE BEST? Yes. I really liked Germany.
- YOUR WEAKNESSES? Chocolate, soppy love stories, good writing, big dreams.
- FRIES/CHIPS, RICE, OR BEANS? Fries/Chips.
- FIRST JOB? Newspaper delivery and then working in a newspaper shop.
- EVER PRANK CALLED SOMEONE? No.
- WHAT WERE YOU DOING BEFORE YOU FILLED OUT THIS? Editing another chapter of the book I am writing with Neil.
- IF YOU COULD GET PLASTIC SURGERY WHAT WOULD IT BE? Nip and tuck everywhere.
- WHY DID YOU FILL OUT THIS MEME? Needed something to blog about.
- WHAT DO YOU GET COMPLIMENTED ABOUT MOST? My writing. Weirdly.
- WHAT WOULD YOU DO IF ALCOHOL BECAME ILLEGAL? Drink more lemonade.
- WHAT DO YOU WANT FOR YOUR BIRTHDAY? A new laptop.
- HOW MANY KIDS DO YOU WANT? Loads, a whole football team. Pah! One or two.
- WERE YOU NAMED AFTER ANYONE? The lead character in that bloody Daphne Du Maurier book,
- DO YOU WISH ON STARS? Yes, just in case someone is listening.
- WHICH FINGER[S] IS YOUR FAVOURITE? My ring finger.
- WHAT WAS THE LAST THING YOU ATE? Tuna mayo sandwich.
- DO YOU LIKE YOUR HANDWRITING? No no no. Drunk spiders could do better.
- WHAT IS YOUR FAVOURITE LUNCH MEAT? Pastrami. No smoked ham,. No pastrami.
- ANY BAD HABITS? Getting randomly angry.
- WHAT IS YOUR MOST EMBARRASSING CD ON THE SHELF? Backstreet Boys Black & White.
- IF YOU WERE ANOTHER PERSON, WOULD YOU BE FRIENDS WITH YOU? Hell no.
- HAVE YOU EVER TOLD A SECRET YOU SWORE NOT TO TELL? Yes, but only to Neil under the ‘Other Half’ agreement.
- DO LOOKS MATTER? No. Talent and personality matter more.
- HOW DO YOU RELEASE YOUR ANGER? Ranting. I, too, bottle it mostly.
- WHERE IS YOUR SECOND HOME? Cinema. I haven’t been home much recently.
- DO YOU TRUST OTHERS EASILY? No.
- WHAT WAS YOUR FAVOURITE TOY AS A CHILD? Lego.
- HOW MANY NUMBERS ARE IN YOUR MOBILE PHONE? About 100
- DO YOU USE SARCASM? I am English – it’s mandatory.
- DO YOU KNOW ANYONE FAMOUS? No.
- HAVE YOU EVER BEEN IN A MOSH PIT? Yes. I am thankful every day that I survived.
- WHAT DO YOU LOOK FOR IN A PLACE TO LIVE? Outside area, 24 hour shop, good public transport… Not here…
- WHAT ARE YOUR NICKNAMES? Bec, Becka, Nom-Nom Becka,
- HOW MANY HATS DO YOU OWN? WHAT’S YOUR HAT SIZE? None. I borrow Neil’s baseball caps.
- DO YOU UNTIE YOUR SHOES WHEN YOU TAKE THEM OFF? Nope.
- WERE YOU UPSET ABOUT STEVE IRWIN DYING? Only as much as I get upset about anyone dying.
- WHAT’S YOUR FAVOURITE ICE CREAM FLAVOR? Strawberry
- ARE YOU LAZY? Yes.
- WHAT ARE YOUR FAVOURITE SONGS AT THE MOMENT? “Brighter Lights, Bigger City” by Cee Lo Green and Falling In Love In a Coffee Shop by Landon Pigg
- WHAT IS YOUR FAVOURITE BAND? Radiohead. I know. I know.
- HOW MANY WISDOM TEETH DO YOU HAVE? I have 2 coming through and have had 2 taken out.
- DO YOU WANT TO GO ANYWHERE SPECIAL THIS YEAR? Yes, we have a post recovery weekend in Wales planned.
- WHAT ARE YOU LISTENING TO RIGHT NOW? Numbers on TV.
- LAST THING YOU ATE? Since the last time this was asked I have had dinner – Southern Fried Quorn burger.
- LAST PERSON YOU TALKED TO ON THE PHONE? My future father in law.
- WHATS THE FIRST THING YOU NOTICE ABOUT YOURSELF IN THE MORNING? How tired I am and how my hair is insisting on being styled by Russell Brand
- FAVOURITE THOUGHT PROVOKING SONG? “Ooo Child (Things Are Gonna Get Easier)” by The Five Stairsteps.
- FAVOURITE TWO THINGS TO HATE? The Labour Party and Chavs.
- FAVOURITE DRINK? Non-alcoholic – Coke Classic (although I suppose that should be Zero now…); Alcoholic – Southern Comfort and lemonade.
- FAVOURITE ZODIAC SIGN? Aries.
- SPORTS YOU LIKE TO WATCH? Football and Rugby.
- WHAT IS YOUR HAIR COLOUR? Brown.
- EYE COLOUR? Blue
- DO YOU WEAR GLASSES? Yes.
- SIBLINGS? One brother.
- FAVOURITE MONTH(s)? May. I fell in love and will be married in this month.
- DO YOU LIKE SUSHI? No.
- LAST THING YOU WATCHED? Buffy episode
- FAVOURITE DAY OF THE YEAR? December 1st – day after NaNoWriMo.
- ARE YOU TOO SHY TO ASK SOMEONE OUT? Yes, I was… turns out Cherryade and Vodka is the way through that!
- SUMMER OR WINTER? Winter – as long as it snows!
- KISSES OR HUGS? Both!!!
- RELATIONSHIPS OR ONE-NIGHT STANDS? Relationship!
- WHO IS YOUR FAVOURITE CELEBRITY? Ryan Reynolds
- WHO IS THE LEAST LIKELY TO ASK YOU ON A DATE? My fiance. Now he’s got me he doesn’t need to bother!
- BOOKS YOU’D LIKE TO SEE TURNED INTO A FILM? My own – once I’ve finished it!
I went to the doctor today.
Nothing big happened but that is kind of the point. I am in the middle of my Hb1Ac and there is nothing the doctors can do for my Diabetes at the moment, I thought I had a solution for my stomach pains. When I was going through the diagnosis I didn’t know I was Diabetic but now… well, I thought there was a possibility that if I came with my symptoms + Daibetic then the Doctor would have a Eureka moment.
I wanted a referral for the PCOS clinic because, well, Neil and I want children at some point. with my ovaries riddled with cysts and me not following the usual cycle that women all around the world follow, I need to be proactive.I am 33 years old and I…
There was some kind of baby clinic on at the surgery and I was so broody. My heart ached.
I also went because my mood swings are wildly out of control. I fly from extreme rage to crying my eyes out to obsessively happy and almost frantic. I am really worried about my head. Mess? Me? Sigh.
I know that everything is getting on top of me and this is probably all just stress but things aren’t supposed to be this hard are they?
And I can’t even afford my blood pressure medication.
It has taken about an hour and a half to write this little post and I have just realised that I haven’t done any of the things I was supposed to have done tonight.
I just want to write! I just want to create. I just want to be me with Neil and the dog.
I’m planning to go to a wedding fayre on Sunday – well, probably, if I can be not tired for just two minutes.
Wow, I am such a whinger – somebody give me a kick up the arse! Please!
Yes, I am rubbish. I think about blogging, I open the blog, I click Add New Post and my mind goes blank. Rather like now. But the rather awesome Karl at Secondhand Tryptophan started blogging again after a break and after reading said post I got a small spark of the blogging joy again. Of course, now I have to come up with something to write and that is the hard bit. Let’s see… Since my last post I have… er… Well, there was the… And then the… Nope.
I got older. Yes, there’s one thing. Phew! I am now 33 years old.
I finished Script Frenzy and have now got more ideas than I know what to do with which is just as well because I am going to need something to distract me
We don’t have an appointment for Neil’s camera test yet, so still no date for his operation… I am the embodiment of a zen like calm. Honest.
Yesterday I voted in the AV Referendum and in my local elections. All around I can say that I felt pointless as neither the AV campaign or the local candidates did enough to convince me of anything. The local candidates have been getting quite a lot of my ire on Twitter because they never bothered to campaign at all. No leaflets, no meetings, no interviews in the local press, no canvassing, no posters, no websites, no Facebook pages, no tweets, nothing. Not even entirely sure they actually exist! But, well, at least I know for certain that nothing will change. Councillor Peter Pringle (who won) is a LibDem in a (now) Labour run council. Ignored he shall be if he bothers to try to do anything. And the Labour Council will just spend the next few years doing nothing and throwing their hands in the air squealing, “We can’t do anything because of all of the cuts!” while they conveniently forget that it is their party’s fault that we have all these problems now!
Political rant over.
The Royal Wedding! Yes! I LOVED the dress and the whole caboodle. Trees in the Abbey? Oh, I loved that. Neil and I had an indoor barbecue in celebration and he pretending not to see when I got all weepy over the vows. Total mess.
I went to a DESMOND Project training session. DESMOND is well Diabetes Education and Self Management for Ongoing and Diagnosed – it was informative, interesting and more than a little annoying. But I learned one thing. I can eat anything I want so long as I have it in moderation. Yep. That was it. And you can have a treat a week. And diet soda is fine. Oh, and depression is just feeling ‘a bit low’. I am really hoping that there is another one so I can learn even more.
The 2nd Kirkham (St. Michael’s) Scout (click here to support them through easyfundraising – register and shop) AGM also happened last month. It was the usual level of crazy and I have 11 months off before it all starts again. I am still in awe of the leaders and helpers that continue to give up their time to make sure the girls and boys have a great time!
I’m sure there was other stuff but I really can’t remember. It’s been a month of little tiny things and great big things but mostly I have just been waiting for something to happen so we can move forwards.
Okay so here’s what is going on.
Eleven days ago Neil and I went to his yearly heart check-up.
Neil has Marfan’s Syndrome which is a rare genetic disorder that affects the connective tissue. It effects about 5,000 people in the U.K. That’s the dry version. The reality is that he is partially sighted and has joint problems and…
At the heart check-up Neil had an Echo and an ECG and X-Rays and then at the end of a very long day a chat with a lovely surgeon who said the first of a lot of very scary words.
Sometime in the next few months Neil will be going in for a heart operation. His aortic valve needs repairing or replacing and his Mitral Valve might need repairing or replacing too.
He is okay. It’s not his first heart operation. I didn’t even know him during the first one which was seven years ago during which his Aortic Valve was repaired. So he’s all fine about it and is more worried about everyone else which is so typical of him.
I am terrified but positive which I think is the healthiest reaction I can have. There will be a week in hospital followed by six weeks of recovery during which I am going to have to try to make “the world’s most difficult patient” (how he describes himself) follow the rules and be healthier. I am scared and have, therefore, become a horrendous bitch – watching everything he does and listening to his heart and breathing and driving him insane.
On Wednesday we have the first of many tests – this one is a Breathing Capability test which is the least stressful. At some point soon Neil will have a T.O.E. – a camera test – which he will be having under General Anaesthetic. It will be fine. Of course it will be.
It has to be.
So, basically, I am sorry for being a bit short and a bit distracted. I will be fine… and I will stop being selfish talking about my own feelings and will just go and see if Neil needs anything.
So, I had the eye exam and I can tell you that they lied. Sting? Sting?! Fraking killed! My eyes felt like they were having acid poured in them but of course I am too bloody polite to say anything. I just let it go and moved back to the waiting room to wait for my pupils to dilate or whatever. Neil was great – he is partially sighted and has been through the eye test I was having a number of times. I was waiting fr my eyes to flip out but other than a weird doubling of everything and… you know when you have bee crying ad you still have tears in the corner of our eyes – the wet window thing? Yeah, like that.
The nurse was lovely and had no problem with Neil coming with me into the room while she did a standard eye test with me (I really need to go to opticians and get some new glasses but things were basically fine with that); and the photographer was very good at explaining what she was doing and why. They tied it in to the whole care I will be getting and emphasised a number of times that I must go to all my appointments. Then it was time to leave after they advised me that I will get a letter through the post some time in the next two weeks with my results and that my eyes would be back to normal in 2-6 hours. Then came the leaving.
When we went in it was perfect eye test weather. – dull, cloudy, potential for rain, lovely. Great, thought I, I will will not need to wear sunglasses which ALWAYS make me look stupid – I will be fine. So, of course, the sun got his bloody hat on hip hip hip hooray and the sunglasses went on. That wasn’t enough though. So, eyes closed, hand tightly on Neil’s arm and feeling rubbish.
I am the worst blind person ever.
I trust Neil with my heart, soul and life and he knows it but, holy God, am I ever surprised he didn’t push me into traffic. I think he may have lost circulation in his arm I was holding on so tight and the amount of times I asked ‘are you sure?’ – mental case. Looooonnnnngggg story short though he got me home and I went to bed hiding away from the bad light… and I slept to avoid the headache that was taking over the greater part of my brain. Yay!
Neil has a regular meet-up with his friends every Tuesday and there was no way I was letting him miss that so I sent him out by vaguely opening one eye in the darkened room insisting I would be fine. No, I didn’t want anything. Yes, I would call if there was a problem. Back to sleep went I.
A couple of hours later I woke to the call of nature and answered with my eyes bleary from sleep I looked in the mirror and was surprised to see that my eyes were still spacey and things were still doubled and wet window-y. Then it all went a little wrong. I couldn’t find my glasses. I needed a little control back and imbued my glasses with the magical powers of sorting my eyes out and they weren’t where they should be. Called Neil and heard ringing in the flat. Yes, his mobile was still attached to the charger where he had apparently left it so, of course, I called my mum who lives 7 miles away and cried down the phone that my glasses had wandered off. I don’t know what I was expecting her to do – use remote viewing to find them?
My mum is awesome in a stupid crisis like this one. She pulls me down off the ledge and wallops some logic back in there. Two suggestions was all it took before the specs were back on my nose -made me think I should check for cameras. Yes, my eyes were still blurry but I was then more concerned with the lingering headache and the feeling sick. It was becoming awesome. More sleep and cuddles from the returned Neil cured that though.
Fast forward through a bad stomach pains and headache and feeling sick Wednesday to Thursday. The post arrived and in it was a letter from the Diabetic Retinal Clinic – any medical letter comes that quick and panic tends to set in. If it’s fast news; it’s bad news – right? I opened it with more than a little trepidation – I was going blind. Glaucoma was marching across my eye balls bring with it a cavalry of cataracts and Diabetic Retinopathy (whatever the hell that is) – how was I going to cope? I had images of darkness and – yes, I went down the rabbit hole fast.
Wow, I am rambling a lot today.
“Your eyes are fine… well screwed because you haven’t been to the opticians in bloody ages but Diabetes wise they’ll do” is exactly what the letter said.
So, now I’m on to the next bit. Tomorrow I see the Diabetic Specialist Nurse who, I have been lead to believe, will sort everything out and tell me how to kick this all in the nuts.. and the I will become healthy and full of energy and able to take over the world!
But right now, I am going back to bed for a while because I feel tired and old and am still getting over the horror of nearly fainting on my mum yesterday while shopping (throwing up in nearly every loo in Preston followed by the inability to use my legs followed by the world going away and nearly knocking my mum over does not a happy Bec make).
No, wait, have to go bake something to encourage Neil (who has finally succumbed to the bug that is going round) to eat.
Okay so I am going to admit something about myself. I don’t like people touching my eyes, or going near my eyes or going near anyone else’s eyes. When I see people putting in contact lenses on TV it wigs me out. I had to help Neil move a contact across his eye a few weeks ago, I did it because it was Neil and he was in pain, but eeeeuuuggghhhhhheeeeewwwwwwww bleurgh…
I’m telling you this because later on today I am having a Diabetic Retinal Eye Scan which means EYE DROPS which one of the Diabetic websites says will STING which is making me a little nervous. My eys will be covered in fluid which will then make my pupils larger – oh God, I’ll have to wear sunglasses (which I really realy don’t suit. Wow, I must be anxious, I am caring bout what I am going to look like!
Mmmm… need to wash my hair.